Why “Good Good Good”?

The word Jake spoke most often— “Good” — was affirming of his pleasure at mealtime when he got to taste some ice cream, chocolate pudding or whipped cream. He also said the word when he was enjoying himself or just when he was happy to be with friends and family. With exuberant gusto, Jake frequently bellied out a loud string of “good, good, good!”

HOW DOES JAKE’S SPIRIT LIVE ON?

Through the hashtags #honoringjake and #rememberingjake people who were touched by Jake’s life continue to be inspired and motivated by him. Friends and family donate blood and platelets, listen to Jake’s annual birthday CDs of his favorite hits, support Boston Children’s Hospital by continuing to walk as Team Jake, raise awareness for CDG through the Teddy Bear Roll, and take time to share memories of Jake.

Where does my donation go?

This year, we are raising money for Make a Wish MA and RI this year.  Jakey's wish trip brought him, his family, and his PCAs to Disney World for an unforgettable week.  Jakey did not say a day at Disney was "Good Good Good"; he upped it and said it was his FAVORITE day!  Let's help other kids have their FAVORITE days too!